Tuesday, June 23, 2009

She Sat on Johnny Depp's Face

(First, another NB: this blog appears in reverse-chronological order. For a more coherent experience, please read it chronologically, beginning with the oldest entries, which can be found to the left under "Blog Archive." Also, these recent posts--after my expulsion from the hospital--are decidedly less witty and interesting than those during my stay, and they should probably be avoided by all but the most blood-related.)


I went back to the hospital today for the first time since my discharge. Routine follow-up stress test and pacemaker check. As I began the test, which involves incrimental exercise on a treadmill, I noticed on the monitor a data field labeled "Bruce." Finding this a bit odd, I asked the technician what it was, and she said the test was named after "Bruce somebody." I love the thought of eponymous honors sticking to just first names.
Washington, D.C.'s famed John Center for the Performing Arts.

But alak, the Bruce treadmill protocol is named after Dr. Robert Bruce. Although, if there's any justice in the world, he named his son Bruce.

Very little of note to report, except in between appointments I went into Westwood to pick up a Philly cheesesteak for lunch. I went to college outside of Philadelphia, yet I'd never had a cheesesteak until last month, when a friend came to visit me in the hospital and brought one. It was one of my top-two meals the entire month in the hospital. So I had this weird, resentful nostalgic desire to have another. Also, it was tasty.

But I couldn't remember the name of the place and I didn't know where it was. I asked at the hospital information desk, but none of the four people stationed there knew. So I wandered down Gayley St. asking college-looking folks if they knew of a really good cheesesteak place in the area. Amazingly, nobody whom I asked knew; so I headed towards the Starbucks to ask a barista.

As I walked east on Wayburyn, I noticed droves of people lining the streets, politely if giddily gathered behind metal barriers. As I got to the Starbucks, I saw that these people had gathered for the premiere of "Public Enemies," Michael Mann's new movie. But on closer inspection, they revealed themselves to be no ordinary people, but full-blown weirdos. Autograph-seekers and aspiring stalkers. One woman had lots of Johnny Depp paraphernalia, and she was even sitting on a huge Johnny Depp beach blanket. I wouldn't have thought such things existed, either, but there she was, sitting atop her Johnny Depp beach blanket. (And, Dear Reader, even if one could argue for the functionality of a Johnny Depp beach blanket, why on earth did this woman feel compelled to bring all the other crap? Was she really worried there'd be any equivocation about her status as Johnny Depp's #1 fan? Wasn't her sitting on a sidewalk for hours and hours in the hopes of catching a glimpse of the man not proof enough? Trust me, lady, your title remains unchallenged.) The whole thing reminded me of the general bizarreness of Los Angeles, and of the further bizareness of UCLA--home of the Ronald Reagan Medical Center. Or, as I call it, the Star of "Bedtime for Bonzo" Medical Center.

Fortunately, the Starbucks barista knew the name of the cheesesteak shop (South Street) and its elusive location (across the street). I still felt a somehow criminal walking around Westwood: a vestige of my few elopements (See "AWOL" and "Cinco de Mayo Clinic!" below), I suppose, as well as some autonomic fight-or-flight reflex triggered by proximity to the hospital.

See, I warned you these recent entries are bo-ring. Forgive me. I blame the antibiotics...

Even though I've been off them for several days.

Friday, May 29, 2009

Stars, They're Just Like Us: They Go to the Hospital, Too!


(First a NB: the posting "ID, Please" has somehow been corrupted, and a large chunk of it is missing. I cannot retrieve nor remember the lost text, but rest assured it was hilarious and poignant. I also can no longer even edit that post--so much for the power of the Internet. Thanks for nothing, Al Gore! 
UPDATE June 2: I think I've reinserted all the text and pics, but I'm still having trouble with the formatting...with any luck the post will at least stay intact for now.)

Way back in my first post, I joked about celeb sightings at UCLA; then, in a subsequent post I had a legitimate A-list sighting and promised to post about it. (In looking back, I can't remember when--I think this might have been in the missing section of "ID, Please.")

John and I were sitting on the patio at noon with our iced coffees when we saw a young movie star emerge, looking professionally beautiful, and smoke several cigarettes before returning to the hospital. I stooped so low as to ask John to use his cell phone to take a picture of the celeb as he walked back in. (John couldn't figure out how to get it off his phone to e-mail me.)

I was blithely going to post some joke about how he was probably at UCLA for his weekly visit to the maternity ward (hint hint). I congratulated myself on my own boundless cleverness.

I then spent the evening with another visitor. It's scary, but I don't remember whom--it may have been my mom, but I feel like this incident preceded her arrival. Anyway, I went back to the elevators in the west wing (wow, how did this not occur to me until now?! All the amazing President Bartlett jokes I could've made! All the Josh-Donna-me fan-fiction porn I could've written!) to return to my floor, and who should emerge from the elevator but this selfsame celeb...

Holding a young child, and with a very normal-seeming, non-celeb woman. Was the child in fact his? Was the child sick? And who was this mystery woman? It was almost 9:00 pm by then. And it occurred to me that nobody spends eight hours in the hospital if things are okay.

And I was overcome with a sense of shame that I'd even considered revealing this huge movie star's identity, as though he somehow had a lesser right to privacy than anyone else. He was likely dealing with something significant and troubling, and I could not casually out him and discuss it, much less try to make light of it.

So, once more I apologize for being a celebrity tease. It's cold comfort, I know, but I will in good conscience out the celeb my mom and I saw at Katsu-ya the night before she left. (Not of course that Mom knows who this person is.) For some reason, dining at LA's best sushi restaurant does not seem as fraught as visiting a (your?) sick child in the hospital. And that celeb was...

Sam Rockwell, whose work I've enjoyed since "Lawn Dogs." 

Mr. Rockwell, shown here in character as Albert Einstein, whom he'll be portraying in "It's All Relativity to Me!"

He was with a foxy blond woman whom I didn't recognize, but who the Internets suggest was Leslie Bibb--a fellow talented attractive celeb. And they were with one set of parents. Then, after dinner my mom and I headed to the adjacent pet store and saw them there, as well.

Parents...pets...sushi? Can wedding bells be far off for Sam Rockwell and Possibly Leslie Bibb? Stay tuned, Dear Readers, as the answer shall be revealed in my next post!

Thursday, May 28, 2009

Gone...Home

Forgive the long delay--and even more so please forgive any worry or concern I've caused anyone with my lengthy absence from the blog. I am fine. More importantly, I am finally home.

Not much to report from home, though, and certainly less fodder for humorous, wacky postings*, but I am home. Which feels good.

I've still got another month of IV Daptomycin (antibiotics), which I'm now administering to myself once a day, through the PICC line. And unfortunately it's making me tired and sluggish, and my red blood cell count is way down, but that's a tiny price to pay to be out of the hospital.

At some point I may have to post about my final night in the hospital: after the pacemaker-implantation surgery, I was in significant pain. (My past three pacemakers have been just below my clavicle; this one was inserted submuscularly, in the deltopectoral groove. Apparently this is a more difficult recovery.) I requested more Vicodin, but my nurse told me it was too soon....So she gave me Dilaudid. Check out the side effects here

Suffice it to say, I immediately started sweating, became incredibly paranoid and agitated with my mother, and vomited repeatedly. Thank you, Nurse, for sending me off with a long, crazy trip. Next time, please just give me some mushrooms.

All right, that's it for now. I will post medical updates as warranted. Cheers.



*Unless you count my cats' daily shenanigans as humorous, wacky fodder. In which case, enjoy Bruce Wayne trying to walk across the clothes hanging in my closet.

video

Thursday, May 14, 2009

Frat House Flower

Yes, I did it! Today marked my third week at UCLA, and I still haven't been voted off the hospital!

Today was also my sister's birthday. Happy birthday, Jess! The cell phone reception in my room is poor, so Mom and I went out to the large hallway by the elevators to call Jess. I looked out the westward-facing floor-to-ceiling window and saw a vista so utopian I assumed it was merely an oasis. A mirage that my hospital-addled mind had forged in a desperate attempt to transport my spirit away from my body's septic incarceration.

Of course I can be speaking of only one thing: a fraternity house rooftop barbecue. This is what I saw by the elevators:
Believe me, I am aware of the symbolism of the bars. They symbolize a ladder to heaven?

Then, from the same window where I'd seen this panorama on Sunday, I saw this:
Click on the picture to enlarge it and behold a grander sense of Shangri-la. Yes, they are playing beer pong. Note the one dude sunbathing on the upper porch. Beer pong is fine for underclassmen, but this communications major prefers sun pong.

It wasn't an hallucination! Hallelujah! As you can see, it's a chapter of SAE. Better still, they've got their Paddy Murphy sign up. Who's Paddy Murphy, you ask?! Only some legendary bootlegger whom Elliot Ness shot and killed...before tragically discovering--via magical frat hand shake--that Murphy was a fellow SAE brother.

I went to a small Quaker college, so my knowledge of Greek life is limited to cultural artifacts.
Fraternities have a rich history of documenting their hazing rituals in ceramics. And yes, I'm aware of the symbolism. Ceramics are fragile, like heterosexual male friendship.

Oddly enough, SAE is the only fraternity I've ever heard of--because a childhood friend, who wound up in another fraternity himself, said that people refer to SAE as "same assholes everywhere."
My knowledge of assholes is also limited to cultural artifacts.

But in my brief Internet research about SAE, I was surprised to discover that William Faulkner and Terry Gilliam are brothers. Then again, so is sports super-agent Scott Boras.
"Barry Zito's mechanics are fine. Trust me!"

Either way, I want to reserve my judgment until I meet an SAE brother. Is President McKinley still alive?

As I lie here in bed now, I can hear the faint din of a large college party. Fortunately I was already woken up by a nurse who was unable to draw blood from my PICC line. The nurses all seem to think midlines can't draw blood, whereas the actual PICC technician swore up and down they could. This may turn into a real problem for me. And I'm feeling as though I may be coming down with a cold. Needless to say, part of me is worried the infection is back, which would also be a substantial bummer and would at least mean a new PICC line, if not a postponement of Monday's suregery.

Fortunately I am helping my own diagnosis by refusing phlebotomy in the middle of the night. Suffice it to say, the entire day I reminded my nurses, and my cardiologist, that no one had done cultures today. By the end of the day, my nurse said it was okay, that there was no order. So the fact that someone (anonymous CCU resident, thank you) ordered cultures at 11:00 and woke me up is too infuriating to countenance.

Mostly, though, I find it so strange that when I looked out the hallway window on Sunday afternoon and saw the foggy, spectral hills, I thought that that reality was about as distant from mine as I could imagine. Then today, looking out the same window at something so entirely different, I had the same feeling.

Fraternity parties and clouds are rocking my conceptions of the world around me, and my understanding of my place in it.

Tuesday, May 12, 2009

Home...Going

For almost a week, I've been operating on the assumption that once I got my PICC line, I'd be able to go home. My cardiologist had assured me this would be okay--in fact, he pointed out that I was more likely to get an infection on the temporary pacemaker if I stayed in the hospital.

Late afternoon yesterday I wandered down to one of UCLA's older cafeterias to get an iced mocha. Simple pleasures attain great significance in demoralizing institutions.
In prison, cigarettes are worth their weight in tobacco, nicotine, paper, cellulose acetate, rayon, and tar.

The cafeteria iced mochas are not surprisingly not great. I walked back to my room through the new hospital's cafeteria (called the "Dining Commons") and noticed that it actually had a small Starbucks stand. How had I eaten there many, many times without noticing this little gem? I stared at the unsatisfying cafeteria mocha in my hand and decided that I was stuck in the hospital and deserved to treat myself to a real iced mocha. So I bought a Starbucks iced mocha latte as well. Venti, baby.

I loaded it up with half and half and sugar--only to discover to my chagrin that it, too, was somehow inadequate. Clearly I'd only thought I wanted iced coffee. Simple pleasures become less simple....So I bought some chocolate chip cookies and headed back to my room to watch the Mets game on ESPN.
Sick children in New York inevitably become Mets fans because of the team's infirm mascot, Mr. Met, a hydrocephalic. Despite his hideous hemicraniectomy scars, Mr. Met puts on a smile--and a show--for his beloved Metropolitans!

Mr. Met prays for a cure for his disfiguring disease. Note his ever-cheery disposition. What a trooper...

Oh, no! He must have been praying to the devil!

As I walked down the mean halls of 7 West, I looked out the window at the end of the corridor and saw this:
The large structure on the hilltop is the Getty Center, one of my favorite places in LA.

Needless to say, the picture doesn't do the view justice. Streaks of low-rolling, sun-streaked clouds caressed the hills. No doubt the light was moodily enhanced by the Santa Barbara brush fires. I couldn't help but feel hopeful on the eve of my release. The spectacular presence of Los Angeles endured; my confinement could not.

Later in the evening the surgeon who'd performed the extraction stopped by--in civilians and in a rush. As soon as I said that I'd been told I could leave the next day, he kind of flipped out. He stressed that if I went home and anything happened to the temporary pacemaker's lead, I could die. (Perhaps finally living up to his reputation of mentioning the chances of my death "five times a minute.")

This morning one of my cardiologists came in and seconded the surgeon. He said they really never let people go home with the temporary pacemakers, and he reiterated the catastrophic, if slight, risks. He also said, "What's five more days in the hospital?" I suppose he has a certain logic there. A Taoist sort of In-N-Out kind of Brahman-is-Atman McNugget.
The Taittiriya Upanishad says: "He who knows the Bliss of Brahman...does not distress himself with the thought, 'Why am I stuck in the hospital? What's another five days?' Whoever knows this (bliss) regards both of these as Atman."

So it looks like I'm stuck here at least another week or so. If I can go a few days past that, I'll make it a full month. As far as I know, Lewis and Clark got from St. Louis to the Pacific Ocean in less than a month.
Sacagawea readies to give Cpt. Willaim Clark the "Nyuck-nyuck" eye-poke. She learned from the best, Chief Why-ay-oughta.

But, I'm determined to try to use my tenure at UCLA productively. Perhaps I can even do some personal creative writing, now that I know I'm trapped here. As I've always said, "If life gives you lemons, get that fishy smell off your hands."

Sunday, May 10, 2009

Who's Your God Now?

Friday's successful surgery was a huge, wonderful relief, though it may slightly undermine the retrospective musings of this post....

Increasingly theology is creeping into my hospitalization. It started with a nurse/missionary's suggesting I pray (see "Even if You're Not a Christian" below). This prompted a similarly upsetting anecdote in the comments section. As the anesthesiologists and nurses prepped me on the OR table, they added small detachable arm rests, which reminded me of a crucifix (not that I've got a Christ complex), and made the operating table resemble a lethal-injection table.
As George W. Bush said, "If the death penalty is administered swiftly, justly, and fairly, it saves lives." Just imagine what medicine can do!

And today I saw a priest wandering the halls of the hospital. I wondered if he was part of UCLA's chaplaincy service. Or if he was just there to visit a friend. And then I wondered, can a priest ever visit someone in the hospital--just as a friend?
Can priests ever be "just friends?" Or must they be friends with benedictions?

Can a priest make a personal not pastoral call? What if a priest visits a Jewish friend? I know that sounds like the setup to a terrible joke, but the answer is as dead-serious as it is obvious: the Jewish patient takes the Eucharist with matzo bread and Manischewitz.
Surprisingly, all matzo bread contains apparitions of the Virgin Mary. Can you find her in this piece?! (Answer to be published in the next post.)

Indeed, religion is pervading my hospital stay. After all, Jeremiah 23:24 is not just a Jenny Craig slogan.
Kirstie Alley, star of "Look Who's Talking," "Look Who's Talking Too," and "Look Who's Talking Now," says, "Before I met Jenny, I'd wake up every morning and ask, 'Do I not fill heaven and earth?'"

"'Do I not fill heaven and earth?' said the Lord" is also often cited as scriptural evidence of God's omnipresence. Either way, it's time for me to welcome God to my illness. Unlike vampires, God doesn't need a technical invitation. And apparently I've got lots of people of lots of faiths praying for me. No, not for the redemption of my godless, foul-mouthed, porn-addicted soul. But for my medical treatment and recovery. And not only do I feel obligated to acknowledge these compassionate strangers, but maybe even to appreciate them.

I've got Episcopalians in New York praying for me. United Church of Christ-ers in Knoxville. Baptists in the Dominican Republic. I've got Jews in New York saying the Mi Sheberakh for me. Okay, maybe getting Jews in New York to pray is about as difficult as getting Kirstie Alley to the craft services table. So if that doesn't impress you, I also happen to have an Iranian Muslim in the holy city of Qom appealing to the daughter of an Infallible Imam for me. And he commissioned his relatives, on a pilgrimage in Karbala, Iraq, to pray for me by the tomb of Imam al-Husayn.
The Shrine of Imam al-Husayn. Some of these people may be praying for me.

This is not the first time I've been the object of intercessory prayer. When I was ten years old and at Boston Children's Hospital for my second open-heart surgery, an entire third-grade class from a Chirstian academy sent me get-well/I'm-praying-for-you cards. I didn't know any of these kids. One of them had shared a hospital room (in New York) with another boy whom I didn't know, whose mother knew my father.

Needless to say, countless studies have been conducted to gauge the efficacy of intercessory prayer, and they have yielded conflicting results. The most exhaustive study, however, was funded by Templeton Foundation, a mainline Christian organization that encourages a scientific quest for the spiritual. I'm probably not describing it well--or fairly, so perhaps it's better to let the Foundation speak for itself. I'll limit my editorial to saying that one of Sir John Templeton's stipulations was for his prize always to carry a richer purse than the Nobel Prize, and that past prizes have been awarded to Mother Teresa and Billy Graham. Here's a science writer's account of working with the Foundation.

The study cost 2.4 million dollars, spanned a decade, and included over 1,800 patients who underwent coronary bypass surgery. The patients were broken up into three groups: one group received intercessory prayer and was told so; another received intercessory prayer but was only told they might be prayed for; and the third received no intercessory prayer and did not even know they were part of the study. The group that received intercessory prayer and knew about it did the worst. According to the New York Times, "patients who knew they were being prayed for had a higher rate of post-operative complications."

My father, who told me about the study, said, "The 2.4 million dollars spent on the study could have provided a lot of medical care to kids who needed it." My mother said, of the countless strangers of varied faiths who are currently praying for me, "It means something to them. It's a special way of loving in their minds."

Maybe they're both right.

Saturday, May 9, 2009

You Can't Spell "Extraction" without "Action"

In fact, you could say that extraction is extra-action! You'd be mocked for your inane word play, but you could say it. And it might adequately describe my last few days. I should also note that my mother came to LA from New York last week, and she's been a saint and an incredible source of support. I could not have gotten through all this without her. And she brought my camera from home, which is how I'm able to pictorially document my most recent elopement and my procedures below.

As I mentioned at the end of "Cinco de Mayo Clinic!," my doctors altered their game plan slightly, and on Thursday they implanted the temporary, external pacemaker.
Thursday after the first procedure. Temporary pacemaker on my left neck, incision on my right, where they initially attempted to put it. I like the symmetry--it matches the hospital bracelet on each wrist. Note how the telly box sexily hangs in front of my genitals.

Yes, that's a pacemaker. Watch out John Connor, here I come.


Sometimes you just have to laugh at life. Unfortunately, this cartoon doesn't help at all.

But Thursday was really just a warm-up for Friday: the extraction of the old pacemaker and its three leads. I outlined the numerous serious risks of this surgery in "ID, Please," so I won't repeat them here. But I will say that I was incredibly anxious.

Thursday night, after the implantation of the temporary pacemaker, the surgeon who'd be performing the extraction came to my room to talk with my mother and me. I'd been warned he had a gruff bedside manner, and that he would mention the chances of my death "five times a minute." But he actually seemed quite pleasant, and didn't fixate too much on the odds of my demise. Instead he fixated on how delicate and complicated the extraction can be. He reiterated what my cardiologist had said: with open-heart surgery, you want to be as fast as possible to get the patient off bypass quickly. With lead extraction, you want to be as careful as possible. So, he said the extraction would take at least four hours, but could easily go ten. He added that he was performing a similar operation in the morning, and would likely not get to me until early afternoon.

My mother and I were left to contemplate all this in our own ways. Since I was NPO (from the Latin nil per os, "nothing by mouth") after midnight, my mom went to Westwood to pick up Italian food for dinner. I had about 4 lbs. of delicious pasta. I even had some beer. Then Mom and I retreated to my room and talked until 3:00 am. At 5:30 a care partner woke me up and declared she had to give me a sponge bath with antiseptic soap before my surgery. I tried to inform her that my surgery was not until early afternoon, at the earliest. This led to a series of nurses coming in and out of my room every few minutes to announce that my surgery was in fact scheduled for 9:00, and the OR wanted me there at 8:30. "Fine," I said, "and why do I have to have this bath at 6:00 am?" I convinced the nurses to wake me at 8:00, which they did. They taped up my various bandages and exposed bio-computers to keep them dry, and then I showered. The antiseptic soap was viscous and red, and I felt like I was bathing in blood, which was nice before surgery.
Sissy Spacek gets ready for her surgery.

I was all shiny and clean and ready to go by 8:25. Which was great, because they didn't come get me until 4:00 pm. But I have to thank the nurses (and whatever idiot they say they spoke to in the OR scheduling room) for giving Mom and me an entire day of constant anxiety. Each time there was a knock at the door, I thought, "Here they come. Now I'm going to surgery." I was able to nap intermitently, but my poor mother was too anxious, too focused on her mama-bear guard duty (a role she'd perfected by the time I was a toddler).

But of course, eventually I got taken down to the OR. I was surprised to see windows lining the hallways. Somehow it defied my expectations of cavelike sepulchral operating rooms. The anesthesiologist poked me several times trying to get his IV in. In fact, this is a fun little game I've established with nurses and phlebotomists, as well. My arms have more tracks than the 1, 2, 3 lines (little shout-out for my New York homies!), which is ironic given that I've got an IV into which I could easily shoot heroin. Shortly thereafter, I went under.

I returned to consciousness in the OR recovery room, and a few minutes later my mother joined me. I was drifting in and out.
In the recovery room. I actually felt worse than I looked.

But with a Wolverine-like healing factor, just moments later I was giving the thumbs-up with a look that said, "Join me for a cocktail, won't you?"

I soon got turfed back to my room, where my mom stayed by my side as I continued my crisscross journey through consciousness. I was lucid enough to speak with a few doctors who came to check up on me and inform me how well the procedure had gone. And I was lucid enough to speak to my father on the phone. But I wasn't lucid enough for the Rubik's Cube contest I'd foolishly entered for that evening. But if losing a Rubik's Cube contest was the worst thing that happened to me yesterday, then yesterday was a really good day.
Frighteningly, this is just the opening contest. The real contest starts when the giants come out and compete to solve the huge Rubik's Cubes that these nerds are using as tables. The victor then eats the puny nerds. Why on earth did I ever want to be a part of this thing in the first place?! My God, what was I thinking...

I was allowed only Oxycodone or morphine. Morphine's always made me feel dizzy and nauseated, so I chose the pill. Which made me feel dizzy and nauseated--and did nothing to address the considerable pain I was in. But I was able to eat most of a tuna sandwich, and a few of the cookies Mom had bought. She slept in my room for the second night in a row.

This morning wasn't great either, as the pain at the incision was pretty bad. Worse still, it's upsetting to discover blood stains in your underpants and realize they came from your penis (presumably from the catheter). Peeing was incredibly painful, too, but became much less so over the course of the day.

My mom and I ate lunch in the cafeteria, and I spoke with Katy, all of which helped me feel like I was recovering well. Now I play a waiting game and hope that my blood cultures come back negative, enabling a safer implantation of the new pacemaker, possibly within a week or two. There's a slim chance I could go home for part of that interim period, but I won't hold my breath. Hopefully, however, with yesterday's success, I'm at least out of the woods.

And I always like to end on a humorous note:
Ha ha ha ha ha!